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Month: October 2018

A note straight from the heart….

A note straight from the heart….

Dear sis, I was just about to vacuum my stairs, put the dishes away, do laundry, pack, finish work….you know me I am always full speed ahead (BUT I am working on slowing down – it’s been good)   I also need to pick Jenna up at 8:30pm from dance…and it is now 5:30pm. However, I suddenly put down the vacuum,  thought about you and decided I wanted to share what I am feeling with you….at this very moment. Today…

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World MSA Day

World MSA Day

Dear sis, Today is World MSA Day.  This is a day which is celebrated world wide to raise awareness to the rare neurological disease that you have, called Multiple System Atrophy (MSA).  We are all to walk a mile and/or light a candle. Well tonight sis,  I lit a candle and spent the evening thinking about you.   I wrote a post about you on the MSA Coalition page.  There are over 7,000 members.  It was so nice to connect…

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